| Theme . | Illustrative quote . | Thematic insight . |
|---|---|---|
| Perceived severity | “Lung cancer is a death sentence; I’ve seen too many people go through it, and it’s always been devastating.” | Lung cancer is viewed as a highly severe and life-threatening disease. |
| “I know how bad lung cancer is, and honestly, I’m scared to know if I’m at high risk. It might just add to my stress.” | Fear of PRS testing due to the psychological burden of knowing one’s high risk. | |
| Perceived susceptibility | “I don’t feel like I’m at risk right now, but I do work in an industry where I’m exposed to a lot of chemicals, so who knows what might happen down the line?” | Perceived susceptibility is low unless influenced by environmental or occupational factors. |
| “I don’t think that I am because I’ve never smoked. I haven’t lived in any places with significant air pollution.” | Low perceived risk due to absence of known risk factors like smoking or pollution exposure. | |
| “Given my family’s history with lung cancer, knowing my genetic risk could help me take preventive measures sooner rather than later.” | Family history increases perceived susceptibility and interest in PRS testing. | |
| Perceived benefits | “The knowledge of the possibility [of heightened lung cancer risk] would be enough to get my head on straight and do my research into all of my options.” | Knowledge of genetic risk is seen as empowering and enabling informed decision-making. |
| “If I’m at high risk, my family might be too. I’d want them to know so they can get tested and take steps to protect their health.” | Genetic testing is valued for its potential to inform and protect family members. | |
| Perceived barriers | “I would want to know if Medicare would pay for it or if it would be an out-of-pocket cost before moving ahead with it.” | Cost is a major barrier to considering PRS testing. |
| “Just how conclusive is the test? I mean, is it 100% accurate? Is it 50% accurate? I think I’d want to know that.” | Concerns about the accuracy and reliability of genetic tests. | |
| “I have general concerns about technology—particularly digital data. Specifically, privacy, security, and how my data would be used.” | Privacy and data security concerns are significant barriers to genetic testing. | |
| “The cons would be my mental state if I found out about it. That would be the cons, dealing with the emotional, mental part of it.” | Concerns about the emotional impact of receiving high-risk results. | |
| Knowledge and interest in PRS | “I’ve just heard that there is genetic testing. I don’t know anything about it.” | General lack of knowledge about PRS testing. |
| “Yes, we did genetic testing in utero for my son.” | Experience with genetic testing is often limited to prenatal contexts. | |
| “Knowing how serious lung cancer is, I’d want to know my genetic risk so I could do everything possible to catch it early or prevent it.” | High perceived severity of lung cancer increases interest in PRS testing. | |
| “I don’t smoke and I don’t work in a factory, so why should I [undergo genetic testing for lung cancer risk]?” | Low perceived susceptibility decreases interest in PRS testing. | |
| “The science isn’t there yet. Even if I knew I was at high risk, what could I actually do differently?” | Skepticism about the utility of PRS testing due to limited actionable steps. | |
| Cues to action | “My father was diagnosed with lung cancer, and that made me think about my own risk and what I could do to find that out.” | Family history serves as a strong motivator for considering PRS testing. |
| “If a doctor recommended it because of my family history or symptoms, then I would probably go ahead and do the test.” | Medical advice plays a crucial role in motivating PRS testing. | |
| “If there was a free screening event, I would definitely be interested in participating.” | Free or accessible screening opportunities increase willingness to participate in PRS testing. | |
| Return of results preferences | “I would rather my doctor tell me my results than a lab tech or a stranger. If it is bad, I want someone to tell me that we’ll get through this together.” | Preference for results to be delivered by trusted healthcare professionals, especially for high-risk findings. |
| “I want somebody who can give me a detailed explanation and help me understand what the results mean for my health.” | Need for clear explanations and understanding of what genetic test results mean. | |
| “I think I should receive all the information found in this test, not just what is relevant to lung cancer.” | Desire for comprehensive information beyond just lung cancer risk. | |
| “Where it’s going? How it’s used? Where it’s stored? Who gets to see—not only who handles it but who also gets to see the results?” | Concerns about privacy, data security, and confidentiality in the handling of genetic information. |
| Theme . | Illustrative quote . | Thematic insight . |
|---|---|---|
| Perceived severity | “Lung cancer is a death sentence; I’ve seen too many people go through it, and it’s always been devastating.” | Lung cancer is viewed as a highly severe and life-threatening disease. |
| “I know how bad lung cancer is, and honestly, I’m scared to know if I’m at high risk. It might just add to my stress.” | Fear of PRS testing due to the psychological burden of knowing one’s high risk. | |
| Perceived susceptibility | “I don’t feel like I’m at risk right now, but I do work in an industry where I’m exposed to a lot of chemicals, so who knows what might happen down the line?” | Perceived susceptibility is low unless influenced by environmental or occupational factors. |
| “I don’t think that I am because I’ve never smoked. I haven’t lived in any places with significant air pollution.” | Low perceived risk due to absence of known risk factors like smoking or pollution exposure. | |
| “Given my family’s history with lung cancer, knowing my genetic risk could help me take preventive measures sooner rather than later.” | Family history increases perceived susceptibility and interest in PRS testing. | |
| Perceived benefits | “The knowledge of the possibility [of heightened lung cancer risk] would be enough to get my head on straight and do my research into all of my options.” | Knowledge of genetic risk is seen as empowering and enabling informed decision-making. |
| “If I’m at high risk, my family might be too. I’d want them to know so they can get tested and take steps to protect their health.” | Genetic testing is valued for its potential to inform and protect family members. | |
| Perceived barriers | “I would want to know if Medicare would pay for it or if it would be an out-of-pocket cost before moving ahead with it.” | Cost is a major barrier to considering PRS testing. |
| “Just how conclusive is the test? I mean, is it 100% accurate? Is it 50% accurate? I think I’d want to know that.” | Concerns about the accuracy and reliability of genetic tests. | |
| “I have general concerns about technology—particularly digital data. Specifically, privacy, security, and how my data would be used.” | Privacy and data security concerns are significant barriers to genetic testing. | |
| “The cons would be my mental state if I found out about it. That would be the cons, dealing with the emotional, mental part of it.” | Concerns about the emotional impact of receiving high-risk results. | |
| Knowledge and interest in PRS | “I’ve just heard that there is genetic testing. I don’t know anything about it.” | General lack of knowledge about PRS testing. |
| “Yes, we did genetic testing in utero for my son.” | Experience with genetic testing is often limited to prenatal contexts. | |
| “Knowing how serious lung cancer is, I’d want to know my genetic risk so I could do everything possible to catch it early or prevent it.” | High perceived severity of lung cancer increases interest in PRS testing. | |
| “I don’t smoke and I don’t work in a factory, so why should I [undergo genetic testing for lung cancer risk]?” | Low perceived susceptibility decreases interest in PRS testing. | |
| “The science isn’t there yet. Even if I knew I was at high risk, what could I actually do differently?” | Skepticism about the utility of PRS testing due to limited actionable steps. | |
| Cues to action | “My father was diagnosed with lung cancer, and that made me think about my own risk and what I could do to find that out.” | Family history serves as a strong motivator for considering PRS testing. |
| “If a doctor recommended it because of my family history or symptoms, then I would probably go ahead and do the test.” | Medical advice plays a crucial role in motivating PRS testing. | |
| “If there was a free screening event, I would definitely be interested in participating.” | Free or accessible screening opportunities increase willingness to participate in PRS testing. | |
| Return of results preferences | “I would rather my doctor tell me my results than a lab tech or a stranger. If it is bad, I want someone to tell me that we’ll get through this together.” | Preference for results to be delivered by trusted healthcare professionals, especially for high-risk findings. |
| “I want somebody who can give me a detailed explanation and help me understand what the results mean for my health.” | Need for clear explanations and understanding of what genetic test results mean. | |
| “I think I should receive all the information found in this test, not just what is relevant to lung cancer.” | Desire for comprehensive information beyond just lung cancer risk. | |
| “Where it’s going? How it’s used? Where it’s stored? Who gets to see—not only who handles it but who also gets to see the results?” | Concerns about privacy, data security, and confidentiality in the handling of genetic information. |
| Theme . | Illustrative quote . | Thematic insight . |
|---|---|---|
| Perceived severity | “Lung cancer is a death sentence; I’ve seen too many people go through it, and it’s always been devastating.” | Lung cancer is viewed as a highly severe and life-threatening disease. |
| “I know how bad lung cancer is, and honestly, I’m scared to know if I’m at high risk. It might just add to my stress.” | Fear of PRS testing due to the psychological burden of knowing one’s high risk. | |
| Perceived susceptibility | “I don’t feel like I’m at risk right now, but I do work in an industry where I’m exposed to a lot of chemicals, so who knows what might happen down the line?” | Perceived susceptibility is low unless influenced by environmental or occupational factors. |
| “I don’t think that I am because I’ve never smoked. I haven’t lived in any places with significant air pollution.” | Low perceived risk due to absence of known risk factors like smoking or pollution exposure. | |
| “Given my family’s history with lung cancer, knowing my genetic risk could help me take preventive measures sooner rather than later.” | Family history increases perceived susceptibility and interest in PRS testing. | |
| Perceived benefits | “The knowledge of the possibility [of heightened lung cancer risk] would be enough to get my head on straight and do my research into all of my options.” | Knowledge of genetic risk is seen as empowering and enabling informed decision-making. |
| “If I’m at high risk, my family might be too. I’d want them to know so they can get tested and take steps to protect their health.” | Genetic testing is valued for its potential to inform and protect family members. | |
| Perceived barriers | “I would want to know if Medicare would pay for it or if it would be an out-of-pocket cost before moving ahead with it.” | Cost is a major barrier to considering PRS testing. |
| “Just how conclusive is the test? I mean, is it 100% accurate? Is it 50% accurate? I think I’d want to know that.” | Concerns about the accuracy and reliability of genetic tests. | |
| “I have general concerns about technology—particularly digital data. Specifically, privacy, security, and how my data would be used.” | Privacy and data security concerns are significant barriers to genetic testing. | |
| “The cons would be my mental state if I found out about it. That would be the cons, dealing with the emotional, mental part of it.” | Concerns about the emotional impact of receiving high-risk results. | |
| Knowledge and interest in PRS | “I’ve just heard that there is genetic testing. I don’t know anything about it.” | General lack of knowledge about PRS testing. |
| “Yes, we did genetic testing in utero for my son.” | Experience with genetic testing is often limited to prenatal contexts. | |
| “Knowing how serious lung cancer is, I’d want to know my genetic risk so I could do everything possible to catch it early or prevent it.” | High perceived severity of lung cancer increases interest in PRS testing. | |
| “I don’t smoke and I don’t work in a factory, so why should I [undergo genetic testing for lung cancer risk]?” | Low perceived susceptibility decreases interest in PRS testing. | |
| “The science isn’t there yet. Even if I knew I was at high risk, what could I actually do differently?” | Skepticism about the utility of PRS testing due to limited actionable steps. | |
| Cues to action | “My father was diagnosed with lung cancer, and that made me think about my own risk and what I could do to find that out.” | Family history serves as a strong motivator for considering PRS testing. |
| “If a doctor recommended it because of my family history or symptoms, then I would probably go ahead and do the test.” | Medical advice plays a crucial role in motivating PRS testing. | |
| “If there was a free screening event, I would definitely be interested in participating.” | Free or accessible screening opportunities increase willingness to participate in PRS testing. | |
| Return of results preferences | “I would rather my doctor tell me my results than a lab tech or a stranger. If it is bad, I want someone to tell me that we’ll get through this together.” | Preference for results to be delivered by trusted healthcare professionals, especially for high-risk findings. |
| “I want somebody who can give me a detailed explanation and help me understand what the results mean for my health.” | Need for clear explanations and understanding of what genetic test results mean. | |
| “I think I should receive all the information found in this test, not just what is relevant to lung cancer.” | Desire for comprehensive information beyond just lung cancer risk. | |
| “Where it’s going? How it’s used? Where it’s stored? Who gets to see—not only who handles it but who also gets to see the results?” | Concerns about privacy, data security, and confidentiality in the handling of genetic information. |
| Theme . | Illustrative quote . | Thematic insight . |
|---|---|---|
| Perceived severity | “Lung cancer is a death sentence; I’ve seen too many people go through it, and it’s always been devastating.” | Lung cancer is viewed as a highly severe and life-threatening disease. |
| “I know how bad lung cancer is, and honestly, I’m scared to know if I’m at high risk. It might just add to my stress.” | Fear of PRS testing due to the psychological burden of knowing one’s high risk. | |
| Perceived susceptibility | “I don’t feel like I’m at risk right now, but I do work in an industry where I’m exposed to a lot of chemicals, so who knows what might happen down the line?” | Perceived susceptibility is low unless influenced by environmental or occupational factors. |
| “I don’t think that I am because I’ve never smoked. I haven’t lived in any places with significant air pollution.” | Low perceived risk due to absence of known risk factors like smoking or pollution exposure. | |
| “Given my family’s history with lung cancer, knowing my genetic risk could help me take preventive measures sooner rather than later.” | Family history increases perceived susceptibility and interest in PRS testing. | |
| Perceived benefits | “The knowledge of the possibility [of heightened lung cancer risk] would be enough to get my head on straight and do my research into all of my options.” | Knowledge of genetic risk is seen as empowering and enabling informed decision-making. |
| “If I’m at high risk, my family might be too. I’d want them to know so they can get tested and take steps to protect their health.” | Genetic testing is valued for its potential to inform and protect family members. | |
| Perceived barriers | “I would want to know if Medicare would pay for it or if it would be an out-of-pocket cost before moving ahead with it.” | Cost is a major barrier to considering PRS testing. |
| “Just how conclusive is the test? I mean, is it 100% accurate? Is it 50% accurate? I think I’d want to know that.” | Concerns about the accuracy and reliability of genetic tests. | |
| “I have general concerns about technology—particularly digital data. Specifically, privacy, security, and how my data would be used.” | Privacy and data security concerns are significant barriers to genetic testing. | |
| “The cons would be my mental state if I found out about it. That would be the cons, dealing with the emotional, mental part of it.” | Concerns about the emotional impact of receiving high-risk results. | |
| Knowledge and interest in PRS | “I’ve just heard that there is genetic testing. I don’t know anything about it.” | General lack of knowledge about PRS testing. |
| “Yes, we did genetic testing in utero for my son.” | Experience with genetic testing is often limited to prenatal contexts. | |
| “Knowing how serious lung cancer is, I’d want to know my genetic risk so I could do everything possible to catch it early or prevent it.” | High perceived severity of lung cancer increases interest in PRS testing. | |
| “I don’t smoke and I don’t work in a factory, so why should I [undergo genetic testing for lung cancer risk]?” | Low perceived susceptibility decreases interest in PRS testing. | |
| “The science isn’t there yet. Even if I knew I was at high risk, what could I actually do differently?” | Skepticism about the utility of PRS testing due to limited actionable steps. | |
| Cues to action | “My father was diagnosed with lung cancer, and that made me think about my own risk and what I could do to find that out.” | Family history serves as a strong motivator for considering PRS testing. |
| “If a doctor recommended it because of my family history or symptoms, then I would probably go ahead and do the test.” | Medical advice plays a crucial role in motivating PRS testing. | |
| “If there was a free screening event, I would definitely be interested in participating.” | Free or accessible screening opportunities increase willingness to participate in PRS testing. | |
| Return of results preferences | “I would rather my doctor tell me my results than a lab tech or a stranger. If it is bad, I want someone to tell me that we’ll get through this together.” | Preference for results to be delivered by trusted healthcare professionals, especially for high-risk findings. |
| “I want somebody who can give me a detailed explanation and help me understand what the results mean for my health.” | Need for clear explanations and understanding of what genetic test results mean. | |
| “I think I should receive all the information found in this test, not just what is relevant to lung cancer.” | Desire for comprehensive information beyond just lung cancer risk. | |
| “Where it’s going? How it’s used? Where it’s stored? Who gets to see—not only who handles it but who also gets to see the results?” | Concerns about privacy, data security, and confidentiality in the handling of genetic information. |
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